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By Lindsay Key People living with myositis learned about research to advance understanding and treatment of the disease during presentations and a tour of the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland on Sept. 6. Myositis refers to a set of autoimmune diseases involving chronic inflammation of the muscles. An estimated 75,000…
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Kaniah Gunter and Holly Jones
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The Myositis Association (TMA) is thrilled to recognize Karen Alexander, a groundbreaking Black supermodel who was diagnosed with dermatomyositis in 2016. Karen will be honored with TMA’s Heroes in the Fight Patient Ambassador Award on September 7, 2024, in Baltimore, MD. The Myositis Heroes in the Fight Patient Ambassador Award is annually presented by TMA…
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The first-ever Externally Led Patient Focused Drug Development (EL-PFDD) meeting on June 7 offered a critical way for patients and their family members to highlight what life with DM is like.
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Our article about immune boosting supplements raised many questions about the effects of herbal products for those who live with myositis. Such products have been heavily promoted in recent years as remedies for all manner of maladies, including viral and other infections such as colds, flu, and COVID 19. While little or no research has…
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