MyoCon! September 24–27, 2026.The Global Conference on Myositis (GCOM) 2026, held March 23–26 in Lisbon, brought together researchers, clinicians, patient organizations, and people living with myositis from around the world. This was the…
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In Memoriam: Remembering Rare Disease Advocate Jenneh Rishe
We are deeply saddened by the loss of Jenneh Rishe—a powerful advocate, a fierce source of hope, and a beloved member of our chronic disease and myositis communities. Jenneh dedicated…
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National Academies Reviews IBM
For years, veterans with inclusion body myositis have asserted that their disease was caused by exposure to toxic materials while they served in the US armed forces. Members of TMA’s…
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TMA Wins NIH’s Prestigious NOURISH Autoimmunity Challenge
The Myositis Association (TMA) has earned national recognition as one of the winning teams in the National Institutes of Health’s NOURISH (Nutrition for OUR Immune System Health): Autoimmunity Challenge. This…
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The Myositis Agenda on Rare Disease Day 2026
By Paula Eichenbrenner, TMA Executive Director Myositis advocates are gathered on Capitol Hill in Washington, DC to meet with Members of Congress about issues that are incredibly important to our…
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