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Welcome the Myositis Mavens In early November, TMA launched the “Myositis Mavens,” a group trained in community outreach and education. The term “maven” comes from Yiddish, meaning “one who understands.” Mavens are those with deep understanding acquired through experience over the years, and TMA believes this is a fitting title for our trained patients and…
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Looking fit and energetic, the rock hero kicked off the Virtual Annual Patient Conference by remembering bits of his own journey with IBM and stressing the importance of supporting myositis research. His introduction to the Conference kicked off TMA’s biggest Annual Patient Conference ever, attended by more than 600 myositis patients from all over the world. Grammy…
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Remember TMA on “Giving Tuesday” Many of you will have received a letter from TMA’s board chairman, Jim Matthews, about including TMA in your year-end holiday donations. While we welcome donations at any time; and of any amount, many of our members like to make small donations on “Giving Tuesday,” as they go forward with…
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Starting October 1, 2020, The U.S. Department of Veterans Affairs (VA) expanded its support for family caregivers, an expansion that might very well affect veterans with myositis. Now the VA will include eligible veterans who have a service-connected disability of 70 percent or higher, regardless of whether it resulted from an injury, illness or diseases. …
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Our thanks to all of you for making TMA’s Virtual Annual Patient Conference the biggest one ever, reaching more than 600 people with myositis, their families and care partners. From the inspiring greeting from rock legend Peter Frampton, himself an IBM patient, to the attendees who still continue informal chat room conversations well after the…
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