The Myositis Association has received many questions from the community about the Covid-19 vaccines and whether they are appropriate for people with myositis.  The situation is complex (multiple vaccines, different timeline for approvals in different countries, availability issues) and is further compounded by each individual’s medical condition.  TMA recommends that people with myositis make their own decision on whether to receive the vaccine in consultation with their physicians and the available data. Additional information will be provided in the future as it becomes available.  
We’ve scheduled a webinar to answer your specific questions. If you’d like to leave questions in advance, email TMA ( Details about the webinar will follow. 

Reliable, up-to-date information is available at the following websites: 

• CDC  (Centers for Disease Control)

• FDA (US Food and Drug Administration)

Dr. Rohit Aggarwal, Chair of TMA’s Medical Advisory Board, has recorded two videos that directly address several frequently asked questions related to the vaccine and myositis.  

The videos are available here

Read the transcript of Dr. Aggarwal’s answers to your questions here

2 comments on “TMA Position on COVID Vaccines”

  1. 1
    Anne Spirou on October 19, 2023

    I receive IVIG infusions for dermatomyositis. I declined the covid vaccine. Since 2020 I have been feeling worse after the infusions and continuously get headaches that last for months. Since most donors are probably vaccinated, could I be getting large doses of the vaccine from the IVIG?
    Thank you.

    1. 2
      Linda Kobert on May 7, 2024

      Anne, it’s possible that some IG may have antibodies to COVID just because people who donate may have had the virus or the vaccine. It’s unlikely that this is what is causing your symptoms, however. We recommend you consult your doctor about your IG symptoms. Also, research clearly shows that the benefit of preventing severe COVID-19 through vaccination outweighs the risk of vaccine-related adverse effects.

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