During the 2024 Global Conference on Myositis (GCOM) that took place in Pittsburgh in March, a group of global myositis patient organizations, led by TMA, wanted to be sure the patient’s voice was heard throughout the scientific sessions. This video was included in the presentation by Dr. Kendrea Garand from the University of Pittsburgh to the nearly 400 attendees at this scientific conference. In it, TMA member and support group leader Rhonda Rogers, discussed what she experiences as a person who lives with inclusion body myositis (IBM) and dysphagia (difficulty swallowing). She also shared the wisdom of members of her support group who also experience dysphagia.

We are grateful for Rhonda’s persistent support and exuberant approach to raising awareness for the myositis cause.

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