In today’s hyper-connected world, technology is woven into nearly every aspect of our lives—from work and socializing to entertainment and even relaxation. While digital tools offer convenience and connection, they…
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Finding the Good
By Jacqui Garcia After returning from Sweden in July 2023, I noticed something was off. My usual walk from the train station to my home became difficult. My muscles felt…
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Turning Grief into Purpose
By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
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Living in the present
By Kristin Hicks Kristin Hicks’s husband, Troy, lives with inclusion body myositis. Thank you to Kristin for sharing this snippet of life with myositis. What is a fun fact about…
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Rare disease research depends on you
By Theresa Curry If 300 million people had the same disease, scientists in every country would be rushing to find a cure, and it would be easy to enroll patients…
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