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On Monday, February 10, 2025, Rich DeAugustinis, Vice Chair of TMA’s Board of Directors, testified to the Georgia Senate Committee on Health and Human Services in support of the Georgia Hope for Patients Act (S.B. 72). This proposed legislation, sponsored by Georgia Senator Matt Brass, will allow patients who have severely debilitating or life-threatening illnesses to…
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By Paula Eichenbrenner, TMA Executive Director and Laurie Boyer, TMA Board of Directors Chair At TMA, we believe research is the key to better treatments and a brighter future for those living with myositis. Our mission includes an important commitment to “fund innovative myositis research.” In fact, TMA has invested nearly $10 million into research…
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Compared to current therapies, chimeric antigen receptor (CAR) T cell therapy can not just suppress the immune system, but partially reset it, interrupting the loop of chronic inflammation and tissue damage caused by autoimmune conditions like myositis. At the International Annual Patient Conference hosted by TMA on September 6-8, 2024, in Baltimore, Maryland, Dr. Maximillian…
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The Myositis Association (TMA) recognizes that the best hope for a cure for myositis diseases lies in research. Since 2002, TMA’s annual research grants program has approved 68 projects totaling nearly $8.2 million to study the underlying causes and natural progression of myositis, develop better treatments and more effective therapies, and ultimately to create a cure…
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When you’ve just been diagnosed with a rare, debilitating, chronic condition, it can be hard to find your footing. The whole terrain seems to be different, unfamiliar, confusing. Here are 10 tips for first baby steps on your myositis journey from a nurse who knows the territory well. Shawna Nielsen is a registered nurse who has…
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