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Robert Grun and his wife were expecting twins. Robert was in his mid-20s working as a compliance officer on mergers, acquisitions, and insider trading in a Wall Street firm in the Twin Towers. He worked all the time, but he was looking forward to starting a family. Three months after his boys were born, he…
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Many community members responded when we asked them to share their stories and insights to help others. Here is some of the best wellness and self-care advice from fellow TMA members!
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Michelle Watson was only 27 when she found herself unable to get up out of a chair. She was working at a hospital at the time, and after getting bloodwork, her doctor called her and said “Drop what you’re doing and come to my office.” One of her labs was 100 times the normal range….
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Myositis Awareness Month is a time to tell the story of your myositis journey. Thanks to TMA members Dan and Alicia Lowther for sharing their journey in this way with us. The couple was featured in the film “Not The Life We Wanted: An Inclusion Body Myositis Documentary.” It’s a compelling new documentary that features…
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By Linda Z. The journey for many of us with myositis can be complicated by overlapping diagnoses such as Sjogren’s, lupus, or fibromyalgia to name but a few. For me, this was polymyositis and interstitial lung disease (ILD). A dual diagnosis often means juggling varying demands in medications, treatments, physicians, and prognoses. My dual diagnosis…
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