By Kambiz Roghanchi Livingston, New Jersey, February: A frosty gust nipped at my skin, but the real chill crept from within. Crimson tendrils snaked up my arms, an alien map…
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TMA was like a life saving ring
Alicia Lowther’s husband Dan found out after years of misdiagnoses that he had inclusion body myositis (IBM). It was a shock to both of them. “Dan decided he was going…
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Maximizing bathroom independence
Thanks to our partners at LiftSeat for sharing this informative article. For most people, using a toilet isn’t something you think twice about. However, when living with a progressive neuromuscular…
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Slowing IBM progression
by Joe Feidt I was having trouble swallowing. That’s how it started. It’s now been 11 years since I heard my neurologist say, “Joe, I’ve got good news and bad…
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Help for coping with IBM
Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized…
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