2025 Global Myositis Patient Conference

Virtual Sessions

MyoCon attendees receive exclusive access to virtual content before, during, and after the conference!

Designed to spark learning and create more connections, virtual sessions are hosted on Zoom. Links will be sent to those who have registered for MyoCon. Attendees can interact as a live, digital audience in Meeting format on Zoom (cameras optional).

12 noon – 12:30pm ET

Virtual Conference Orientation

Never attended a TMA conference before? Please join this orientation session that will help you get the most out of your MyoCon experience!

12:30 – 1:30pm ET

Virtual Getting Acquainted Breakout Sessions by Disease Type

Breakout rooms for IBM, DM, IMNM, ASyS, PM, Care Partners
This breakout session will help you get to know fellow conference attendees with the same diagnosis.

6:00 – 7:00pm ET

Media Pitching 101: The Who/What/Where/When/Why of Landing TV, Radio & Print Interviews
Presented by: Lindsay Guentzel, award-winning radio journalist & producer for CBS Radio affiliate WCCO Radio and Minnesota Public Radio; Leader, TMA Minnesota Support Group

Want to raise awareness for myositis or share your story with a wider audience? This session will walk you through the basics of media pitching—from identifying the right outlets to crafting compelling pitches that get noticed.

 
11:00am – 12:00pm ET

Virtual Conference Session: Stronger with Support: The Role of Protein in Muscle Disease
Presented by: Julie Sanfilippo, RDN, Diabetes Prevention Program Healthcoach, Elmhurst Memorial Healthcare

Myositis leads to muscle inflammation and weakness, making nutrition – especially protein – an essential part of treatment and recovery.  In this talk we’ll look at why protein matters for people with muscle disease and how it can support your strength and energy.

1:00 – 2:00pm ET

Virtual Conference Session: Cook Along with White House Chef Tom
Presented by: Chef Tom McNulty

A fun experience with the former White House Executive Chef to Vice Presidents Cheney, Biden, and Pence. Doable from any home kitchen and featuring adaptive cooking tools for those with myositis. An ingredient list and flavorful recipe will be sent in advance for those who want to cook along live (or you can just watch!)

 
10:15 – 11:30am ET (9:15am CT in Dallas)

World Myositis Day Closing Keynote Speaker

“Living Well With Autoimmune Diseases: A Rheumatologist’s Guide for Taking Charge of your Health” presented by physician and book author Julius Birnbaum, MD, MHS. Live from MyoCon in Dallas! Anyone across the globe can connect at no cost, thanks to our sponsors AstraZeneca and Cabaletta Bio.

 
12 noon – 12:45pm ET

Virtual Conference Reunion and Staying Acquainted Breakout Sessions
Breakout rooms for IBM, DM, IMNM, ASyS, PM, Care Partners

Following our time in Dallas, TMA’s post-conference reunion will keep those connections going!

 

Session Recordings

Travel is difficult for many, and we want to share the MyoCon learnings as widely and inclusively as possible. That’s why we offer a package of recordings from most sessions on the conference agenda.

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These valuable, digital resources will be delivered to you in an email with a unique link where you can view the recordings at your leisure. Recordings are expected to be available in late October.

This package includes:

  • Video recordings of pre-conference virtual sessions
  • Video recordings of the opening and closing keynote addresses
  • Video recording of the Heroes in the Fight Awards Ceremony featuring our myositis heroes
  • Thirty audio-recorded breakout sessions synced with slides from the presentation.

Recordings are only sold as a package. Individual sessions are not available for purchase. 

2025 MyoCon Recordings Pricing:

Virtual-Only Purchaser $149.00
2025 MyoCon Registered Attendees* Included in Registration

*Attending MyoCon, but want to revisit some of the sessions after your Dallas trip? Registered attendees automatically receive the recordings as an extra benefit of their conference registration! No need to order separately.

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