Thank you for supporting The Myositis Association through Fundraising Campiagns.  Donations such as yours allow us to continue expanding and improving the programs and services we offer those battling myositis.

Feeling compelled to get in on the action? Start your own campaign.

  • Tony Nestico Memorial 5K

    Fundraiser: The Anthony J. Nestico Foundation for Myositis
    Goal: $10,000.00

    Tony Nestico was diagnosed with Polymyositis in March, 2015. During the course of his treatment journey, he encountered countless setbacks and complications which exacerbated his already difficult diagnosis. While Tony gave the fight everything he had, it was too much to overcome and he passed away on November 22, 2018 at the age of 55. TonyR...

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  • Crossing the Cooper for Christ #myositisawareness

    Fundraiser: Chip Galloway
    Goal: $4,316.00

    I am a 1991 Graduate of The Citadel in Charleston South Carolina. I was diagnosed with Inclusion Body Myositis in January 2020. Conquering the Ravenel Bridge over the Cooper River in Charleston with a 5.6% degree grade at it’s steepest, would be a great accomplishment and great way to bring awareness to Myositis. My prayer is to bring as m...

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  • In honor of Jacob: 5k Campaign

    Fundraiser: Jacob's Friends
    Goal: $4,000.00

    This past year, our friend Jacob Wachspress was diagnosed with myositis interrupting his graduate studies at MIT. In honor of Jacob’s journey and to support others struggling with the disease, we will be participating in a 5k walk/run on August 19th to raise money for the Myositis Association. Your contribution is greatly appreciated! ...

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  • JoAnn Leisher Retirement

    Fundraiser: JoAnn Leisher
    Goal: $500.00

    This campaign is to support research for Inclusion Body Myositis (IBM) a rare muscle degenerative disease Larry has struggled with for 17 years. There is no known cause of IBM and the disease has no treatment. Without research funding there is no hope for a cure. ...

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  • Help Caregivers By Finding A Cure For IBM

    Fundraiser: G. Ours
    Goal: $4,000.00

    I was diagnosed with IBM in 2013. After 9 years, I greatly appreciate the work of family and friends who have become caregivers. I also realize that this is a great burden on those we love and are nearest to. Like their patients, their lives are turned completely upside down, still they continue day after day and year after year to care for us. ...

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  • Amma’s Legacy

    Fundraiser: Anannya Yazdan-Ahmed and Antora Yazdan
    Goal: $12,003.00

    Jani dekha hobe ( জানি দেখা হবে )-We will meet again. Selina Alam Yazdan fought with grace and courage during her battle with a rare form of an autoimmune disease called anti-MDA5 amyopathic dermatomyositis, which caused rapidly progressive interstitial lung disease resulting in respiratory failure. Despite a lung transplan...

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  • Bringing the force

    Fundraiser: Team V
    Goal: $1,000.00

    We lost Tony to PM 2/2/2017 after a sudden onset of PM and unknonwn complications. Our daughter and I are working toward our black belts and part of belt achievement is a good cause support or community project. Our family would like to organize and honor walk to raise money for this organization. We ultimately would like to make it an annual ev...

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  • Trudy Rose Brody

    Trudy Rose Brody Memorial Fund

    Fundraiser: Martin Brody
    Goal: $2,500.00

    Our wife, mother, grandmother, sister, aunt, friend Trudy Rose Brody succumbed to the effects of Polymyositis in January 2017. She had a disease that was diagnosed in 2006 and she had treatments with varying degrees of success; but she had no cure and she had no idea what caused the disease. In 2009 Trudy founded and led a Suffolk County ...

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