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  • TMA Northern California, Oregon & Washington IBM Support Group Meeting

    TMA Hawai’i, Northern California, Oregon & Washington IBM Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Register here!   Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group...

  • TMA Maryland, Delaware, District of Columbia, Northern Virginia Myositis Support Group Meeting

    TMA Maryland, Delaware, District of Columbia, Northern Virginia Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    The TMA MD, DE, DC, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland, Delaware, District of Columbia, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn...

  • Rare Disease Week MyoCon 2026 Scholarship Fundraiser

    Virtual Event
    Commemorative

    Help Us Raise $5,000 for TMA’s Patient Conference Scholarship Fund Attending MyoCon: TMA's Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families, providing education, support, and a sense of community. This year, for Rare Disease Week, February 23-27, 2026, our goal is to bring together 50 donors and...

  • TMA Rainbow Affinity Group Meeting

    TMA Rainbow Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In...

  • Moving Forward. Looking Ahead. An Event for Patients hosted by FDA

    Commemorative

    The FDA will host “Moving Forward. Looking Ahead. An Event for Patients" for Rare Disease Day. Join this virtual public meeting on Monday, February 23, 2026, in global observance of Rare Disease Week. Learn More. Are you participating in a Rare Disease Day event? Please email [email protected] to let us know where you are participating. Visit TMA's website for more events honoring...

  • TMA Northern California Autoimmune Myositis Support Group Meeting

    Virtual Event

    Register here Join the TMA Northern California Myositis Support Group: A Community for Those Living with Auto-Immune Myositis The TMA Northern California Myositis Support Group is a vital resource for individuals living with autoimmune types of myositis, including Antisynthetase Syndrome (ASyS), Dermatomyositis (DM), Interstitial Lung Disease (ILD), Juvenile Myositis (JM, JDM), Melanoma Differentiation-Associated Gene 5...

  • Rare Disease Week at Capitol Hill

    Commemorative

    This free multi-day event, hosted by the Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases, brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate...

  • TMA Men Managing Myositis Affinity Group Meeting

    TMA Men Managing Myositis Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,...

  • TMA Virginia, West Virginia, Northeast North Carolina Myositis Support Group Meeting

    TMA Virginia, West Virginia, Northeast North Carolina Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can...

  • Rare ase Day at NIH

    Commemorative

    On Friday, February 27, 2026, from 9 AM to 5 PM ET, the NIH will host Rare Disease Day 2026, both in-person at the NIH main campus (Natcher Conference Center) and virtually via NIH VideoCast. Be sure to stop by and say hello to the TMA team at our myositis exhibit table at the NIH.  For more information...

  • Share Your Rare in Honor of Rare Disease Day 2026

    Featured
    Commemorative

    Rare Disease Journeys Community Survey  For Rare Disease Day on February 28th, 2026, TMA wants to hear from you! Share your tips for navigating a rare medical journey in myositis and what you and your family do to overcome isolation, connect with others, and make your rare experience easier. Share your story here. Are you...

  • TMA Northeast Texas Myositis Support Group Meeting

    TMA Northeast Texas Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Register Here Attend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners Living with myositis is easier with friends. TMA's support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences, find helpful resources, and gain insights on...