The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...
Register Here Join the TMA Minnesota & Wisconsin Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group...
This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...
Learn more about TMA’s Proclamation50 Initiative, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding, diagnosing, and supporting those affected by these rare diseases. On February 11th at 6 pm ET, Jamie Batiste, our...
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...
This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...
Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. February's meeting...
Join us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis, treatment options, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in real time...
The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing...
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort...
Register here! Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group...