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Virtual Event
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Virtual Event
Living with myositis means navigating a constant stream of input — from well-meaning family members, friends, and co-workers who don't always know what to say (or when to say it). This webinar tackles the art of setting healthy boundaries with the people closest to you, and gives you practical language for handling tricky questions and... |
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TMA is excited to bring our beloved Ask the Expert series to our Arabic-speaking community! Join us for a special session with Dr. Elie Naddaf, a neurologist and myositis specialist, who will answer your questions in Arabic. This is your chance to get clear, expert answers to the questions that matter most to you —... |
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Virtual Event
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Have myositis questions for a neurologist? Now's your chance to ask one of the field's leading specialists. Join us for a special Ask the Expert session featuring Conrad C. Weihl, MD, PhD, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice... |
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Featured
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Featured
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For many veterans living with myositis, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing, dressing, meal preparation, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own... |
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Virtual Event
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Virtual Event
MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. FAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation, together with a healthy study diet, can reduce dermatomyositis disease activity and improve strength,...
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The emergency department can be overwhelming—especially when you're living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies, patients often face unique challenges that aren't always well understood by ER staff. In this session, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal...
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Being a care partner is a journey of love, commitment, and resilience. Join Christina Keys, CEO and Founder of Keys for Caregiving, for this virtual session focused on creating balance, practicing kindness toward ourselves, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners' own well-being... |
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