Celebrate Rare Disease Day all month with rare disease events from TMA, FDA, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone...
Help Us Raise $5,000 for TMA’s Patient Conference Scholarship Fund Attending MyoCon: TMA's Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families, providing...
The FDA will host “Moving Forward. Looking Ahead. An Event for Patients" for Rare Disease Day. Join this virtual public meeting on Monday, February 23, 2026, in global observance of Rare Disease Week. Learn...
This free multi-day event, hosted by the Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases, brings together rare disease advocates from across the country to...
On Friday, February 27, 2026, from 9 AM to 5 PM ET, the NIH will host Rare Disease Day 2026, both in-person at the NIH main campus (Natcher Conference Center) and virtually...
Rare Disease Journeys Community Survey For Rare Disease Day on February 28th, 2026, TMA wants to hear from you! Share your tips for navigating a rare medical journey in myositis...
Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! Order deadline is May 8, 2026. Eight designs are available with multiple styles, colors,...
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s...
Honey Dee - May is "Myositis Awareness" Month and I am here to help get the word out for all of those affected by this rare disease. Watch for merchandise...
Chip in for a great cause during Myositis Awareness Month at our TMA Open! Register Now! Support myositis research and patient well-being on Friday, May 1 at 9:00 AM (check-in...
In recognition of Myositis Awareness Month and IMNM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed, informal gathering is a space to...