In The News Archives - The Myositis Association

TMA member and medical advisors pivotal in patient reported outcomes research

April 25, 2025April 30, 2025

TMA is excited to announce that The Journal of Rheumatology recently published a pivotal study titled “The Dermatomyositis Disease Symptom Questionnaire (DM-DSQ): A Measure to Assess the Patient Experience of Dermatomyositis Symptoms.” This groundbreaking research, led by an international team of myositis experts, including TMA medical advisors Dr. Lisa Christopher-Stine, Dr. Namita Goyal, and Dr….

TMA Hosts Patient Stories on Rare Disease Day

February 27, 2025February 27, 2025

Rare Disease Day Summit highlights myositis and the 7000 other rare diseases affecting one in ten Americans COLUMBIA, MD, UNITED STATES, February 27, 2025 /EINPresswire.com/ — The Myositis Association (TMA), in collaboration with the Myositis International Health and Research Collaborative Alliance (MIHRA) and Nori’s Fight, will host, We Care for Rare Summit: Celebrating Myositis Science…

TMA board vice chair testifies in support of Georgia’s Hope for Patients Act

February 14, 2025February 13, 2025

On Monday, February 10, 2025, Rich DeAugustinis, Vice Chair of TMA’s Board of Directors, testified to the Georgia Senate Committee on Health and Human Services in support of the Georgia Hope for Patients Act (S.B. 72). This proposed legislation, sponsored by Georgia Senator Matt Brass, will allow patients who have severely debilitating or life-threatening illnesses to…

Rare diseases need more research, not less

February 11, 2025February 13, 2025

By Paula Eichenbrenner, TMA Executive Director and Laurie Boyer, TMA Board of Directors Chair At TMA, we believe research is the key to better treatments and a brighter future for those living with myositis. Our mission includes an important commitment to “fund innovative myositis research.” In fact, TMA has invested nearly $10 million into research…

TMA awards nearly half a million dollars in myositis research grants

January 31, 2025April 15, 2025

The Myositis Association (TMA) recognizes that the best hope for a cure for myositis diseases lies in research. Since 2002, TMA’s annual research grants program has approved 68 projects totaling nearly $8.2 million to study the underlying causes and natural progression of myositis, develop better treatments and more effective therapies, and ultimately to create a cure…