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Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
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An IBM patient-led research project Editor’s note: This is part one of a three-part series of articles from Dr. Kevin Austin, an Adjunct Professor in the Health Futures Institute’s Personalised Medicine Centre in Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
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By Julia Nickerson Noriel Cunanan lit up every room he entered. With his radiant smile and a generous, inspiring spirit, he brought energy and optimism wherever he went. A devoted friend, he always offered a helping hand, lifted spirits, and sparked fresh ideas. His battle with myositis began suddenly with a rash in late February…
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By Stanford Erickson Two women were, for me, like celebratory bookends to The Myositis Association’s International Annual Patient Conference in Baltimore September 6-8, 2024. One was the opening Friday night keynote speaker, Jessica Buchanan, who, together with a coworker, was held captive for 93 days by ransom-seeking Somali pirates. The second was Saturday night’s Heroes…
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Myositis Awareness Month is a time to tell the story of your myositis journey. Thanks to TMA members Dan and Alicia Lowther for sharing their journey in this way with us. The couple was featured in the film “Not The Life We Wanted: An Inclusion Body Myositis Documentary.” It’s a compelling new documentary that features…
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