Jamie Batiste never expected that the path to advocacy would begin in a childhood bedroom, where she and her brother Aaron spent hours pretending to host their own radio show….
Continue Reading
Long-time Friends Find Humor and Purpose in Difficult Journey
November is National Family Caregivers Month, a time dedicated to recognizing and honoring the millions of Americans who provide essential care for loved ones. TMA recognizes with gratitude these generous…
Continue Reading
Turning Grief into Purpose
By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
Continue Reading
Living in the present
By Kristin Hicks Kristin Hicks’s husband, Troy, lives with inclusion body myositis. Thank you to Kristin for sharing this snippet of life with myositis. What is a fun fact about…
Continue Reading
Partners in the fight
By Ed McGrath My wife Marilyn has dermatomyositis, diagnosed in 2008. Her dermatologist initially thought she had lupus, but two years later she finally saw a rheumatologist who knew exactly…
Continue Reading