By Paula Eichenbrenner, TMA Executive Director. “Strength in numbers” is a cliche because it’s true, and every year, EveryLife Foundation for Rare Diseases assembles nearly 1,000 rare disease advocates during…
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How to qualify for Social Security Disability benefits with a rare disease
If you have been diagnosed with a rare disease and you can’t work because of the symptoms of that disease you may qualify for Social Security disability benefits. As long…
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TMA board vice chair testifies in support of Georgia’s Hope for Patients Act
On Monday, February 10, 2025, Rich DeAugustinis, Vice Chair of TMA’s Board of Directors, testified to the Georgia Senate Committee on Health and Human Services in support of the Georgia Hope…
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Better Medicare Part D benefits for 2025
Two important changes have been made to Medicare Part D in 2025 that may help make the cost of your prescription drugs more affordable and more manageable.
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Last call for comments for DM PFDD
TMA was honored to partner with Myositis Support and Understanding (MSU) to host the Externally Led Patient Focused Drug Development (PFDD) meeting for adult dermatomyositis (DM) on June 7. View…
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