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Compared to current therapies, chimeric antigen receptor (CAR) T cell therapy can not just suppress the immune system, but partially reset it, interrupting the loop of chronic inflammation and tissue damage caused by autoimmune conditions like myositis. At the International Annual Patient Conference hosted by TMA on September 6-8, 2024, in Baltimore, Maryland, Dr. Maximillian…
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The Myositis Association (TMA) recognizes that the best hope for a cure for myositis diseases lies in research. Since 2002, TMA’s annual research grants program has approved 68 projects totaling nearly $8.2 million to study the underlying causes and natural progression of myositis, develop better treatments and more effective therapies, and ultimately to create a cure…
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When you’ve just been diagnosed with a rare, debilitating, chronic condition, it can be hard to find your footing. The whole terrain seems to be different, unfamiliar, confusing. Here are 10 tips for first baby steps on your myositis journey from a nurse who knows the territory well. Shawna Nielsen is a registered nurse who has…
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Since 2002, The Myositis Association’s annual research funding program has awarded nearly $8.2 million in research support. We are pleased to announce our 2024 grant awards, funding disease-specific projects in myositis: Our first grant of $80,000 is awarded to Thomas Lloyd, MD, PhD, Chief of Neurology at Baylor College of Medicine, Houston, TX, for his…
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Clinical trials are an important part of the process of testing new medications and treatments to see if they are safe and effective. All medical treatments and devices must be tested with human subjects before they are approved by the FDA and made available for use. Because myositis diseases are rare, it’s sometimes hard for…
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