Patients and patient organizations play a pivotal role in myositis research. Those who live with the disease are, in fact, the experts on myositis, and increasingly they are actively involved…
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Patient reported quality of life study results
No one needs to tell someone with myositis that the disease brings with it a great many physical, mental, and financial challenges. The debilitating symptoms significantly affect one’s quality of…
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Using food to help your body heal
By Kim Murray RD, LDN Inflammation is your body’s natural way of protecting itself. If you scrape your knee, for example, the redness and swelling you see on the skin…
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TMA Hosts Patient Stories on Rare Disease Day
Rare Disease Day Summit highlights myositis and the 7000 other rare diseases affecting one in ten Americans COLUMBIA, MD, UNITED STATES, February 27, 2025 /EINPresswire.com/ — The Myositis Association (TMA),…
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Rare Disease Advocacy During Rare Disease Week 2025
By Paula Eichenbrenner, TMA Executive Director. “Strength in numbers” is a cliche because it’s true, and every year, EveryLife Foundation for Rare Diseases assembles nearly 1,000 rare disease advocates during…
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