It is safe to say that all of our lives have significantly changed over the last month. It is important to acknowledge that these are uncertain and unsettling times. As…
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Sample Advocacy Letter to Your Public Official on Hydroxychloroquine Shortage
Date NameAddress Dear Senator/Representative/Governor _____________________: My name is _______________, and I am a __year old man/woman living with ______(type of myositis). I was first diagnosed _______. I writing to you today as a member of the myositis community because there is a national shortage…
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Autoimmunity may be rising in the United States
By The National Institute of Environmental Health Sciences 4/8/2020 Autoimmunity, a condition in which the body’s immune system reacts with components of its own cells, appears to be increasing in…
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FDA allows for emergency use of donated hydroxychloroquine and chloroquine (plaquenil)
On March 29, 2020 the U.S. Department of Health and Human Services issued a statement that they have “accepted 30 million doses of hydroxychloroquine sulfate donated by Sandoz, the Novartis generics…
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Coronavirus Update -Plaquenil Shortages, IVIG and Ibuprofen
On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19. However, there are no available data from randomized clinical trials to…
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