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2021 DMV Fun Fit Flex

Because of your generosity and participation in 2021 DMV FUN FIT FLEX, The Myositis Association was able to present grant funding of over $13,700 to benefit the work of our partner, the Johns Hopkins Myositis Center! When we come together, we can make a huge difference! FUN FIT FLEX is still accepting donations through December…

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It’s time to get connected.

One of the biggest goals we have at The Myositis Association is to leverage “The Power Of US!” and to increase our connectivity. We’ve heard your feedback and considered thoughtfully how we could bring everyone together in ways that will build our community and give quicker access to resources and information. We’ve built a brand-new…

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Today is National Myositis Awareness Day

On September 25, 2006, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by The Myositis Association. Today, many states and localities across the country recognize and celebrate the day with…

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FDA Approves Octapharma’s Octagam® 10% for Adult Dermatomyositis

The U.S. Food and Drug Administration (FDA) has granted approval to Octapharma USA for Octagam® 10% the first and only intravenous immunoglobulin (IVIg) to be indicated for the treatment of adult dermatomyositis! The U.S. Food and Drug Administration (FDA) has granted approval to Octapharma USA for Octagam® 10% [Immune Globulin Intravenous (Human)], the first and only intravenous…

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TAP INTO THE POWER OF YOUR MIND

With the right intentions, you can use your mind as a tool to achieve amazing things.  You know how sometimes one rotten thing can ruin an otherwise wonderful day? What if you could stop that from happening, and stand up to the negativity that tries to interrupt your day? With mindfulness, you can. As a…

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