During the 2024 Global Conference on Myositis (GCOM) that took place in Pittsburgh in March, a group of global myositis patient organizations, led by TMA, wanted to be sure the patient’s voice was heard throughout the scientific sessions. Eli worked with TMA to tell his harrowing story of going from healthy to nearly dying from interstitial lung disease (ILD) to the 400+ attendees at the conference. His video was included in the presentation by pulmonologist Dr. Robert Hallowell from Harvard Medical School on “When ILD goes bad.”
We are grateful for his courage in sharing this incredible story.
Thanks Eli for being so brave and sharing your myositis journey with others. Wishing you all the best.
What a terrifying experience. I’m so glad to hear you’re doing all right now.