By Jenna Radke
In January of 2022, my life took an unexpected turn. Just one month after graduating from my undergraduate university and embarking on the journey to apply to medical school, I began developing symptoms of dermatomyositis. At the time, I had no idea how this rare and unpredictable disease would affect my life or disrupt my carefully laid plans. I ended up delaying my medical school journey by a year, a decision that felt monumental. But through determination and a lot of hard work, I am now a part of West Virginia University School of Medicine—a milestone that represents not just my ambition, but my resilience.
When I shared the news of my acceptance, my family lightheartedly joked that I’d someday become the doctor to cure myositis. While their optimism was touching, my initial reaction was less enthusiastic: “How miserable would that be?” You see, dermatomyositis affects so many aspects of my life—how I move, what social activities I can enjoy, and even how I allocate my time. The idea of spending my career immersed in the same world of rheumatology, neurology, dermatology, or pulmonology that I navigate as a patient felt suffocating.
Living with dermatomyositis is undeniably challenging. It’s a condition that demands attention and alters the rhythm of my life. Yet, it does not define me, and I will never allow it to. Yes, it has shaped my journey, but it has not changed who I am at my core. I am so much more than this diagnosis, and I refuse to let it eclipse the many joys and passions that make life meaningful to me.
I find happiness in my friends, family, the serenity of nature walks, the escape of a good book, and countless other experiences that remind me of the beauty of life beyond illness. These are the things that sustain me, the parts of my life that dermatomyositis can never touch.
Despite the challenges I’ve faced, my passion for medicine remains as strong as ever. I am deeply excited about the endless possibilities within the field—the diverse specialties I can pursue, the innovative advancements I can contribute to, and the opportunity to help patients navigate their own health journeys. While my experiences as a patient have given me a unique perspective, I am eager to forge a path that allows me to empathize with others without being tethered to my own story. Medicine offers a vast world of discovery and connection, and I can’t wait to find my place within it.
Dermatomyositis is a big part of my life—it has reshaped my plans, tested my resolve, and taught me lessons in strength and adaptability. But it will never become my whole life. My story is not one of limitation but of balance, perseverance, and the unwavering belief that I can live fully, with joy and purpose, despite the challenges.
This journey is mine, and while dermatomyositis has a place in it, it will never own the narrative.
As someone who is nearing full recovery from dermatomyositis after 9 years, I recognize your life attitude as one of the main reasons for my remission. I refused to let it define me although, as you aptly recognize, its unpredictability and impact cannot be denied. Even though we have similar stories, I am most reminded of friend of mine who, also experienced full remission after her residency in gastroenterology. She was an inspiration to me as I made remission my goal. Continue to be impactful, caring and positive in your journey. I have no doubt you will achieve wonderful things.
You’re such a warrior and inspiration for others – thank you for sharing your story!
This is an incredible story!
Jenna,
Your story is similar to mine in many areas. I was diagnosed with Dermatomyositis a month ago, I am a Physical Therapist Assistant so my work life has been challenged. Your story is positive which gives me hope.
I look forward to following your experices.
Best to you!
Heather Manning
I was diagnosed with Dermatomyositis in 1998–The diagnosis was made by my PCP but after that it became very difficult basically with treatment-being told you would be dead in five years to the upgrade that you would be in a Nursing home in five years–Persistence was the answer–and believing in yourself and having a Doctor tell you there are treatments, you’ll be OK–I would consider myself to be in remission since 2001–yes I still have monthly treatments but that’s ok–As an RN, it did change my life, but adapted and continued to work full time-So yes it changed my life but it didn’t defeat me–Life is Good.
You are an inspiration to everyone who has the privilege of meeting you. Your unwavering determination, positive attitude, and boundless resilience are truly remarkable. You embody hope and the power to uplift those around you. I am so proud of all you’ve accomplished and feel so fortunate to have a front-row seat to witness all that lies ahead!
Jenna,
You are an inspiration, and we are awed by your strength and positivity. You are a bright light shining the way for others.
Your story inspires us all. I admire how you adapted and changed your plan, instead of giving up. Nothing can stop you.
Wow Jenna. That was such a deep and personal story to share, thank you for your honesty and your courage.
Jenna,
You are truly a remarkable young woman. I can’t wait to see what you accomplish next.
Jenna
What a beautiful story about your journey it’s a it’s an inspiration for all . Your determination and perseverance are palpable. I’ve known you since infancy and have always been impressed by you as you grew into a lovely young lady. May you have success in your continued journey as an incredible warrior!
Maureen