May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources and education, sharing strategies for advocacy, and building a stronger and more connected myositis community.
TMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis, plus incredible community-wide events. Plus! Powerful resources to help you tell your story, support each other, and expand the public’s understanding of myositis. In doing so, you can shorten the wait between symptoms and diagnosis. Ultimately, your efforts will speed up the search for better treatments and a cure.
With your help, we can educate your community…and the world!
Accelerate TMA’s impact in the month of May. 💙
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Learn about more ways to support our mission.
TMA Advocates Spread Awareness and Inspiration
Media Coverage of TMA Members
- Myositis, a Debilitating Disease: Local Man Raises Awareness through First Pitch Campaign featuring Vance Robinson on KSBY News, San Luis Obispo, CA
- Man Diagnosed with Rare Muscular Disorder Crosses the Cooper to Bring Awareness featuring Chip Galloway on WCSC News, Charleston, SC
- Southwest Florida Myositis Support Group Celebrates Anniversary in Sarasota Herald-Tribune, FL
Special Blogs and Interviews
- Lindsay’s Story: What It’s Like to Live with Myositis by Lindsay Guentzel at Know Rare
- Living with a Rare Muscle Wasting Disease – Inclusion Body Myositis with Jim Mathews on The Medical Maze: Decoding Misunderstood Diseases
- Norfolk Mother Won’t be Victimized by Rare Illness featuring Kaniah Gunter at Health Journal
Clinicians Raising Awareness
- When the Provider Becomes the Patient: A Personal and Clinical Journey with Dermatomyositis by Jen Swisher, PA-C at Hippo Education
- Myositis Awareness Month with Double Lung Transplant Recipient and Author featuring Omni McCluney, PA-C, MMSC, MPH on CW39 News, Houston, TX
- Your Muscle Weakness May Not Just Be a Sign of Aging featuring Drs. Conrad Wiehl and Julie Paik at Wall Street Journal
Patient, Care Partner, and Provider Stories
- Patient stories on TMA’s blog
- Care partner stories on TMA’s blog
- Dr. Merrilee Needham, neurologist
- Dr. Lisa Christopher-Stine, rheumatologist
Helpful Myositis Resources
TMA can help you explain myositis to your family, friends, neighbors, and health care providers. Take a look at the following resources before getting started with your awareness campaign.
- About Myositis and Diagnosis
- TMA’s Myositis Library
- TMA’s YouTube Channel and Myositis Awareness Playlist
- Myositis 101: Your Guide to Understanding Myositis
- Physician’s Guide to Myositis
- TMA Infographics
Increase Myositis Awareness with TMA
- Register for Diagnosis Days, webinars, or special events
- Use the myositis awareness toolkit to share your experience within your community
- Tell TMA about your myositis journey. You could be the next patient story on our blog!
- Share your mental health strategies. Your tip could be published in TMA’s Myositis Awareness Month 2025 e-book!
- Pitch in with VRob’s First Pitch campaign
- Network with elected officials through Proclamation 50
Get Even More Involved with TMA
- Fundraise. Combine awareness and fundraising with a fun community event, like this Myositis Awareness Car Show!
- Join Our Legacy Society
- Volunteer
- Advocate
Thank You, Sponsors
TMA is grateful to these companies for sponsoring Myositis Awareness Month 2025.
Thank you for your support in raising awareness for myositis. If you have any questions about what you can do to help or need additional resources, please do not hesitate to contact our team.