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Celebrate Rare Disease Day all month with rare disease events from TMA, FDA, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events, visit our Rare Disease Awareness page: Rare Disease Awareness - The Myositis...
Help Us Raise $5,000 for TMA’s Patient Conference Scholarship Fund Attending MyoCon: TMA's Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families, providing education, support, and a sense of community. This year, for Rare Disease Week, February 23-27, 2026, our goal is to bring together 50 donors and...
Join us for a Myositis Research Insights webinar featuring Dr. Christina Charles-Schoeman, a leading rheumatologist and researcher whose work is advancing our understanding of inflammatory muscle disease. Dr. Charles-Schoeman will highlight current research in myositis, including immune mechanisms that drive disease activity and how these insights are shaping more targeted, effective approaches to treatment. This...
From noon to noon April 15-16, TMA is participating in The Giving Challenge! Please consider supporting our mission to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. Our programs and services provide information, support, advocacy, and research for the myositis community. Please share this page to raise...
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources and education, sharing strategies for advocacy, and building...
What’s next in myositis treatment—and what are the latest clinical trials revealing? The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar kicking off Myositis Awareness Month called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference, held every two years, convenes March...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Immune-mediated Necrotizing Myopathy (IMNM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed, informal gathering is a space to connect with others who truly understand the DM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences that shaped...
For those with DM, PM, NM and with or without ILD. Join us for an informative and supportive Ask the Expert webinar featuring Dr. Robert Hallowell, Director, Interstitial Lung Disease Program Director, Pulmonary Ambulatory Clinic at Massachusetts General Hospital. This session will explore key aspects of diagnosis, treatment options, and symptom management for individuals affected...
Registration details coming soon! In partnership with the Thomas family, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and...
Every day, individuals living with myositis face muscle weakness, fatigue, isolation, and uncertainty. But they don’t have to face it alone. Through education, support groups, research funding, and advocacy, The Myositis Association (TMA) connects patients and families to the resources and community they need to move forward with strength and hope. Your gift fuels critical...
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources and education, sharing strategies for advocacy, and building...