TMA proudly partners with worldwide patient advocacy organizations to drive myositis awareness on World Myositis Day. The next World Myositis Day is Saturday, September 21, 2024.

World Myositis Day was adopted in 2023, building upon TMA’s efforts to create a National Myositis Awareness Day in the US.

World Myositis Day 21 Sep

September is an important month for TMA, which has hosted the International Annual Patient Conference annually in September since 1995. On September 25, 2006, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by TMA.

In 2015, TMA expanded observance efforts to the month of May. Myositis Awareness Month increases opportunities for raising awareness of the disease. September 21 continues to be observed, and now the recognition of the myositis community is on a worldwide scale!

TMA proudly participates in World Myositis Day alongside the following patient advocacy organizations.

  • Cure JM Foundation
  • Deutsche Myositis-Gruppe/German Myositis Group
  • GIMI – AFM-Telethon
  • iMyos
  • Myositis Association of Australia
  • Myositis Canada
  • Myositis Support & Understanding
  • Myositis UK
  • Riksförening för myositsjukdomar/Swedish Myositis Working Group
  • Spierziekten Nederland/Dutch Myositis Working Group
  • Stichting Spiersiekte IBM/The Netherlands IBM Foundation

To add your patient advocacy organization’s name to this list, please contact us.