TMA’s Global Myositis Patient Conference – Celebrating Our Worldwide Community!Register Now!
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REGISTER HERE FOR ZOOM Our third quarter meeting is Saturday, August 2, 2025 starting at 11 a.m. and ending around 3:15. All members, their friends and families are welcome to attend. This meeting will be ZOOM ONLY. No in-person meeting this quarter. 
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own... 
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
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Register here Join the TMA Northern California Myositis Support Group: A Community for Those Living with Auto-Immune Myositis The TMA Northern California Myositis Support Group is a vital resource for individuals living with autoimmune types of myositis, including Antisynthetase Syndrome (ASyS), Dermatomyositis (DM), Interstitial Lung Disease (ILD), Juvenile Myositis (JM, JDM), Melanoma Differentiation-Associated Gene 5... |
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Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
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Virtual Event
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Join us for an insightful session with Julio Huapaya, MD, a critical care and pulmonary specialist affiliated with Johns Hopkins Medicine and the NIH Clinical Center. Dr. Huapaya's talk will dive into his cutting-edge research on myositis-associated interstitial lung disease (M‑ILD), focusing on: Longitudinal clinical features and outcomes in patients with anti‑synthetase syndrome autoantibodies, based... 
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
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Virtual Event
Virtual Event
Register Here 💬 Your questions, answered by a myositis expert! Ask the Expert with Dr. Astia AllenzaraJoin us on Monday, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara, MD, MSCR, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on... |
2 events,
Virtual Event
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Virtual Event
TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! Meet Jim Milani, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for Myositis...
Hybrid Event
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Hybrid Event
Register Here Join the TMA North & South Carolina Myositis Support Group: Connect, Learn, and Find Support The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months on the second Saturday at 12:00... |
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Hybrid Event
We'll eat and socialize from noon until 1pm and then at 1pm, we will move into the private community room area where we will be able to welcome in anyone who wants to join us virtually on Zoom. Lunds and Byerly's has a wide variety of lunch options, including a soup and salad bar, hot... |
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Join TEDx speaker and founder of The disABLED Company™, Alicia Polak, for a powerful and uplifting Empowerment Clinic as she shares her personal journey with Inclusion Body Myositis. Through relatable stories, moments of levity, and lessons in self-advocacy, Alicia will explore how a mindset rooted in being Able, Authentic, and Adaptive can transform the experience... |
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Register Here Join the TMA Kansas & Western Missouri Myositis Support Group: A Community for Myositis Warriors The TMA Kansas & Western Missouri Myositis Support Group is a welcoming space for individuals living with myositis. Meeting 3-4 times per year, this group provides a supportive environment to connect, share experiences, and learn from others facing... 
Register here! Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group... |
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Register Here Join the TMA MD, DE, DC, and Northern Virginia Myositis Support Group: A Community for Myositis Warriors The TMA MD, DE, DC, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland, Delaware, District of Columbia, and Northern Virginia regions. Meeting every two months on... |
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TMA’s Ask the Expert webinar series gives members of the myositis community direct access to leading experts in the field. Each session features a trusted medical professional who answers your questions about specific types of myositis, treatment options, research developments, and disease management. August’s Ask the Expert webinar features Iazsmin Bauer Ventura, MD, a clinician... |
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Register Here Attend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners Living with myositis is easier with friends. TMA's support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences, find helpful resources, and gain insights on...
Virtual Event
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Virtual Event
It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also... |
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Register Here Join the TMA New Jersey Myositis Support Group: Connect, Learn, and Find Support The TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET, this group offers a chance to connect with others who understand the challenges of... |
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1 event,
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
0 events,
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2 events,
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
