This free multi-day event, hosted by the Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases, brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate...
The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,...
This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can...
On Friday, February 27, 2026, from 9 AM to 5 PM ET, the NIH will host Rare Disease Day 2026, both in-person at the NIH main campus (Natcher Conference Center) and virtually via NIH VideoCast. Be sure to stop by and say hello to the TMA team at our myositis exhibit table at the NIH. For more information...
Rare Disease Journeys Community Survey For Rare Disease Day on February 28th, 2026, TMA wants to hear from you! Share your tips for navigating a rare medical journey in myositis and what you and your family do to overcome isolation, connect with others, and make your rare experience easier. Share your story here. Are you...
Register Here Attend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners Living with myositis is easier with friends. TMA's support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences, find helpful resources, and gain insights on...
👉 Register here TMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET, except December. Peer-led support groups matter at every stage of the journey. Even if you’re currently thriving, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA, we pride ourselves on...
This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere...
Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide...
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...
Register Here Join The Myositis Association and the University of Kansas Medical Center for a free virtual regional conference designed for individuals living with myositis—including inclusion body myositis, immune-mediated necrotizing myopathy, dermatomyositis, polymyositis, anti-synthetase syndrome, and overlap syndromes. Patients, care partners, family members, and friends are all welcome to attend. Don’t miss this opportunity to...