Get ready for something special! Join us for an exciting edition of The Myositis Association's Meet & Greet Leadership Series — this time, we're turning the spotlight on MyoCon 2026! Hosted by TMA Executive Director Paula Eichenbrenner, this can't-miss event goes beyond your typical Q&A. We're bringing in special guests who will share their unique...
Join Us for a Myositis Awareness Fundraiser at Runza! TMA Nebraska Myositis Support Group is hosting a special fundraiser at Runza, and we'd love for you to stop by! A huge thank you to our incredible group leader, Laura Deardoff, for making this happen. Come enjoy a great meal while supporting a great cause —...
This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...
The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months (March, June, September and December) on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others,...
Living with myositis in Tennessee? You don't have to navigate it alone. TMA's Tennessee Support Group brings together patients, caregivers, and families who understand exactly what you're going through — because they're going through it too. Come share your story, ask questions, learn from others' experiences, and build real connections with people close to home....
Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Register here.
Join Dr. Prateek Gandiga, a leading expert in dermatomyositis (DM), for a discussion on patient experiences in the VALOR trial, the largest study ever conducted for adults with DM. Explore what patients reported with an investigational once-daily oral medication about their symptoms, daily activities, quality of life, and overall well-being. Understand what these findings may...
For those with DM, PM, NM and with or without ILD. Join us for an informative and supportive Ask the Expert webinar featuring Dr. Robert Hallowell, Director, Interstitial Lung Disease Program Director, Pulmonary Ambulatory Clinic at Massachusetts General Hospital. This session will explore key aspects of diagnosis, treatment options, and symptom management for individuals affected...
The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing...
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort...