For many veterans living with myositis, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing, dressing, meal preparation, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own...
This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can...
MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. FAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation, together with a healthy study diet, can reduce dermatomyositis disease activity and improve strength,...
The emergency department can be overwhelming—especially when you're living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies, patients often face unique challenges that aren't always well understood by ER staff. In this session, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal...
Being a care partner is a journey of love, commitment, and resilience. Join Christina Keys, CEO and Founder of Keys for Caregiving, for this virtual session focused on creating balance, practicing kindness toward ourselves, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners' own well-being...
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide...
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of...
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere...
Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...