For many living with Inclusion Body Myositis, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. Join us for the second part of this two-part symposium this May (Part 1 will be available on our YouTube Channel by first week in May), bringing...
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis, MD, a leading myositis specialist, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed, informal gathering is a space to connect with others who truly understand your myositis journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and...
The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing...
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort...
👉 Register here TMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET, except December. Peer-led support groups matter at every stage of the journey. Even if you’re currently thriving, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA, we pride ourselves on...
TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In...
Join us for a special community screening of Diagnosis Denied, a powerful investigative documentary series from 11Alive Investigates and NBC affiliates across the country, examining why U.S. veterans diagnosed with inclusion body myositis (IBM) are so often denied VA disability benefits. Through reporting from coast to coast, the series uncovers patterns in claim denials, gaps...
The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,...
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging research. Next, we will come together...
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist, Dr. Jens Schmidt, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging research. This webinar...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences...