The emergency department can be overwhelming—especially when you're living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies, patients often face unique challenges that aren't always well understood by ER staff. In this session, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal...
Being a care partner is a journey of love, commitment, and resilience. Join Christina Keys, CEO and Founder of Keys for Caregiving, for this virtual session focused on creating balance, practicing kindness toward ourselves, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners' own well-being...
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide...
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of...
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere...
Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...
This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...
New to MyoCon or just want a refresher? Join us for this virtual "Know Before You Go" session designed to help you feel confident and connected before you arrive in St. Louis. We'll start with a short presentation covering what you need to know before conference: what to expect onsite, how to navigate the schedule,...
Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis, polymyositis, inclusion body myositis, immmune-mediated necrotizing myopathy, and antisynthetase syndrome — drawing on...