In recognition of Myositis Awareness Month and IMNM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH), who will share expert insights on...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences...
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide...
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...
In celebration of Myositis Awareness Month, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an "Ask the Expert" session along with an informal luncheon and open networking in TMA's office. Don't miss your chance to view TMA history, mingle with other families affected by...
Join us in supporting a true legend of the disc (Frisbee) golf world — Jumpin’ Joe Feidt — as he leads a fundraiser for The Myositis Association (TMA) on May 9 in Inver Grove Heights, Minnesota. Whether you register to play the Innova-sponsored PDGA-sanctioned tournament or support virtually through Joe’s fundraising campaign, your contribution makes...
This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...
The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...
This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed, informal gathering is a space to connect with others who truly understand the DM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences that shaped...
In recognition of Myositis Awareness Month and DM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins, who will share expert insights...