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  • Hospital of Special Surgery (HSS) New York City Myositis Support Group

    Hospital of Special Survey (HSS) New York City Myositis Support Group
    Support or Affinity Group Meeting

    The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...

  • TMA Africa Myositis Support Group Meeting

    TMA Africa Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...

  • MyoCon Virtual Session – Conference Orientation & Getting Acquainted

    Webinar

    New to MyoCon or just want a refresher? Join us for this virtual "Know Before You Go" session designed to help you feel confident and connected before you arrive in St. Louis. We'll start with a short presentation covering what you need to know before conference: what to expect onsite, how to navigate the schedule,...

  • Ask the Expert featuring Tahseen Mozaffar, MD, FAAN

    Virtual Event
    Webinar

    Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis, polymyositis, inclusion body myositis, immmune-mediated necrotizing myopathy, and antisynthetase syndrome — drawing on...

  • TMA Colorado Myositis Support Group Meeting

    TMA Colorado Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...

  • TMA Military Veterans with Myositis Affinity Group Meeting

    TMA Military Veterans with Myositis Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...

  • TMA North & South Carolina Myositis Support Group Meeting

    TMA North & South Carolina Myositis Support Group Meeting (Hybrid)
    Virtual Event
    Support or Affinity Group Meeting

    The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months (March, June, September and December) on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others,...

  • TMA Tennessee Myositis Support Group Meeting

    TMA Tennessee Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Living with myositis in Tennessee? You don't have to navigate it alone. TMA's Tennessee Support Group brings together patients, caregivers, and families who understand exactly what you're going through — because they're going through it too. Come share your story, ask questions, learn from others' experiences, and build real connections with people close to home....

  • TMA WomenWithIBM Affinity Group Meeting

    TMA WomenwithIBM Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Register here.

  • Myositis-ILD: Bridging Specialties on ILD Awareness Day

    Eddie Merlot's 444 Liberty Avenue, Pittsburgh, PA, United States
    Clinician Education

    ​Join us for an intimate and meaningful evening hosted by Nori’s Fight and The Myositis Association. This event will bring together physicians, researchers, patients, and community members for a thoughtful discussion focused on myositis, with an emphasis on Dermatomyositis and associated interstitial lung disease (ILD).​Through expert insights and shared experiences, we aim to deepen awareness,...