TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In...
Join us for a special community screening of Diagnosis Denied, a powerful investigative documentary series from 11Alive Investigates and NBC affiliates across the country, examining why U.S. veterans diagnosed with inclusion body myositis (IBM) are so often denied VA disability benefits. Through reporting from coast to coast, the series uncovers patterns in claim denials, gaps...
The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,...
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging research. Next, we will come together...
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist, Dr. Jens Schmidt, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging research. This webinar...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences...
As we close out Myositis Awareness Month, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently, comfortably, and fully. We are thrilled to welcome Monique Chabot, PhD, OTD, OTR/L, FAOTA, SCEM, CLIPP, CAPS, Associate...
This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can...
Join Us at the Ballpark! ⚾ Grab your peanuts and rally cap — we're heading to a Minor League Baseball game! Join fellow myositis community members for a fun night out at Segra Park in Columbia, SC as the Columbia Fireflies take on the Charleston RiverDogs on Thursday, May 29 at 7:00 PM ET. This...
Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis? Natural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis...
Register Here Join the TMA Minnesota Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group provides a valuable opportunity...