TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
Register here. Join us for connection, support, and shared experiences with others living with myositis in Arizona and Nevada. This welcoming group meets quarterly—on the first Saturday of February, May, August, and November—via Zoom. Whether you're newly diagnosed or have been living with myositis for years, you’re invited to be part of a caring community...
Register Here Join the TMA New Jersey Myositis Support Group: Connect, Learn, and Find Support The TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET, this group offers a chance to connect with others who understand the challenges of...
Inscrivez-vous ici Le 4 novembre à 18 h, heure d'Europe centrale, joignez-vous à nous pour une séance dynamique et informative destinée aux personnes francophones touchées par la myosite, aux proches aidants et aux professionnels. Animée par Fiona Ratkoff, membre de TMA, notre experte sera Valérie LeClair, MD. Elle partagera des stratégies pratiques, répondra à vos...
Register Here Join us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis, treatment options, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in...
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide...
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...
TMA Colorado Myositis Support Group has reactivated and meets on the second Saturday of each month at noon Mountain Time! Meet Jim Milani, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for Myositis...
Register Here Join the TMA North & South Carolina Myositis Support Group: Connect, Learn, and Find Support The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months on the second Saturday at 12:00...
Register Here Join us for an informative webinar on the results of the VALOR study, which tested an investigational, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and what they could...
End of the year holidays can be stressful for many. However, having a chronic illness can bring increased stress and anxiety. How to manage expectations, fatigue, pain, and the unpredictable nature of myositis will be the topic of discussion for this meeting. Members who are unable to attend but wish to share their experiences and...
Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. February's meeting...