This meeting’s theme is “Sharing Our Talents”. It is an opportunity for our members to share their talents, as well as thoughts and ideas. Examples could be: reading something you’ve written, offering favorite recipes, displaying crafts and artwork, and any other things that you would consider appropriate. An open forum also gives us the opportunity...
Join us for Myositis Research Insights, a special webinar on June 9 at 6:00 PM, featuring internationally recognized myositis researcher Dr. Iago Pinal Fernandez. Dr. Pinal Fernandez will share key findings from his work, highlighting advances in understanding myositis subtypes, disease mechanisms, and implications for diagnosis and treatment. This webinar offers a valuable opportunity to...
Register Here Join the TMA Minnesota & Wisconsin Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group...
This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...
Get ready for something special! Join us for an exciting edition of The Myositis Association's Meet & Greet Leadership Series — this time, we're turning the spotlight on MyoCon 2026! Hosted by TMA Executive Director Paula Eichenbrenner, this can't-miss event goes beyond your typical Q&A. We're bringing in special guests who will share their unique...
Join Us for a Myositis Awareness Fundraiser at Runza! TMA Nebraska Myositis Support Group is hosting a special fundraiser at Runza, and we'd love for you to stop by! A huge thank you to our incredible group leader, Laura Deardoff, for making this happen. Come enjoy a great meal while supporting a great cause —...
This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...
The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months (March, June, September and December) on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others,...
Living with myositis in Tennessee? You don't have to navigate it alone. TMA's Tennessee Support Group brings together patients, caregivers, and families who understand exactly what you're going through — because they're going through it too. Come share your story, ask questions, learn from others' experiences, and build real connections with people close to home....
Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Register here.
Join Dr. Prateek Gandiga, a leading expert in dermatomyositis (DM), for a discussion on patient experiences in the VALOR trial, the largest study ever conducted for adults with DM. Explore what patients reported with an investigational once-daily oral medication about their symptoms, daily activities, quality of life, and overall well-being. Understand what these findings may...