Join us in supporting a true legend of the disc (Frisbee) golf world — Jumpin’ Joe Feidt — as he leads a fundraiser for The Myositis Association (TMA) on May 9 in Inver Grove Heights, Minnesota. Whether you register to play the Innova-sponsored PDGA-sanctioned tournament or support virtually through Joe’s fundraising campaign, your contribution makes...
This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...
The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...
This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed, informal gathering is a space to connect with others who truly understand the DM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences that shaped...
In recognition of Myositis Awareness Month and DM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins, who will share expert insights...
Register here! Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group...
Please join us for the third annual C Potter Classic with kids and adults softball game, stadium food/pizza, tailgating, beers, and fun. All in honor of our lovely Carolyn. All proceeds to The Myositis Association.
For many living with Inclusion Body Myositis, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. Join us for the second part of this two-part symposium this May (Part 1 will be available on our YouTube Channel by first week in May), bringing...
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis, MD, a leading myositis specialist, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed, informal gathering is a space to connect with others who truly understand your myositis journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and...