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  • TMA Women Of Color Affinity Group Meeting

    TMA Women Of Color Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...

  • TMA Southwest Florida Myositis Meeting (HYBRID)

    TMA Southwest Florida Myositis Support Group Meeting (Hybrid)
    HealthFit 5880 Rand Blvd, Sarasota, FL, United States
    Hybrid Event
    Support or Affinity Group Meeting

    This group welcomes all Florida residents (and snowbirds) with myositis and their care partners to attend. This group meets four times a year in hybrid format (in-person and on zoom) every three months on the first Saturday from 11 AM-3 PM ET. Register Here TMA support groups are a place to connect, be understood, and...

  • TMA Care Partner Affinity Group Meeting

    TMA Care Partner Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of...

  • TMA Worldwide Myositis Support by Diagnosis

    TMA Worldwide Myositis Support by Diagnosis
    Virtual Event
    Support or Affinity Group Meeting

    TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...

  • TMA Arizona & Nevada Myositis Support Group Meeting

    TMA Arizona & Nevada Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Register here. Join us for connection, support, and shared experiences with others living with myositis in Arizona and Nevada. This welcoming group meets quarterly—on the first Saturday of February, May, August, and November—via Zoom. Whether you're newly diagnosed or have been living with myositis for years, you’re invited to be part of a caring community...

  • Partnering for Success: Understanding the Role of Your Clinical Trial Representative

    Virtual Event
    Webinar

    Register Here When you join a clinical trial, you’re paired with a clinical trial representative who becomes your primary guide throughout the study. But what exactly does this role include—and how can you build a strong, effective partnership? In this webinar, Mercedes Herrera, an experienced Clinical Research Coordinator with the UCI Center for Clinical Research,...

  • Physical Therapy for Myositis hosted by Hospital of Special Surgery (HSS) New York City Myositis Support Group

    Hospital of Special Survey (HSS) New York City Myositis Support Group
    Support or Affinity Group Meeting

    The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...

  • TMA Minnesota & Wisconsin Myositis Support Group Meeting

    TMA Minnesota & Wisconsin Myositis Support Group
    Virtual Event
    Support or Affinity Group Meeting

    Register Here Join the TMA Minnesota & Wisconsin Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group...

  • TMA Africa Myositis Support Group Meeting

    TMA Africa Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...

  • Proclamation50 Office Hours

    Featured
    Virtual Event

    Learn more about TMA’s Proclamation50 Initiative, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding, diagnosing, and supporting those affected by these rare diseases.  On February 11th at 6 pm ET, Jamie Batiste, our...

  • TMA Military Veterans with Myositis Affinity Group Meeting

    TMA Military Veterans with Myositis Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...