Open to all regardless how long ago you joined TMA! Living with myositis can be challenging, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know, understand, and share your new normal. Connect with people like...
Celebrate Rare Disease Day all month with rare disease events from TMA, FDA, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events, visit our Rare Disease Awareness page: Rare Disease Awareness - The Myositis...
Learn more about TMA’s Proclamation50 Initiative, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding, diagnosing, and supporting those affected by these rare diseases. On February 11th at 6 pm ET, Jamie Batiste, our...
Rare Disease Journeys Community Survey For Rare Disease Day on February 28th, 2026, TMA wants to hear from you! Share your tips for navigating a rare medical journey in myositis and what you and your family do to overcome isolation, connect with others, and make your rare experience easier. Share your story here. Are you...
Learn more about TMA’s Proclamation50 Initiative, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding, diagnosing, and supporting those affected by these rare diseases. On March 26 at 6 pm ET, Jamie Batiste,...
TMA and Sam are joining forces for Autoimmune Awareness Month — and we're closing it out with a conversation you won't want to miss! Together, we're bringing the myositis and autoimmune communities into an open, honest dialogue about one of the most common — and complex — parts of living with myositis: long-term steroid use....
Chip in for a great cause during Myositis Awareness Month at our TMA Open! Register Now! Support myositis research and patient well-being on Friday, May 1 at 9:00 AM (check-in 8:00 AM) at Blue Ridge Shadows Golf Course in Front Royal, VA. Format: Captain’s Choice Price: Teams $500 | Individual $150 | Virtual golfers welcome!...
As we close out Myositis Awareness Month, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently, comfortably, and fully. We are thrilled to welcome Monique Chabot, PhD, OTD, OTR/L, FAOTA, SCEM, CLIPP, CAPS, Associate...
This webinar will review different nutrients and diets and what is known about their effects on autoimmune diseases. Speakers Kirstin Zambell, PhD, RD, Clinical Research Dietitian at National Institutes of Health (NIH) and Lisa Rider, MD, Pediatric Rheumatologist and Head of the Environmental Autoimmunity Group at National Institute of Environmental Health Sciences, National Institutes of...
For many veterans living with myositis, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing, dressing, meal preparation, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own...