Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
In recognition of Myositis Awareness Month and IMNM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH), who will share expert insights on IMNM, including diagnosis, current research, and treatment considerations.
The webinar will be hosted by Jim Shea, a dedicated TMA volunteer living with IMNM, who will guide the discussion and represent the lived experience of patients navigating this rare disease.
Why Diagnosis Days Matter
TMA created Diagnosis Days during Myositis Awareness Month to honor the often long, complex, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family, friends, and broader networks to attend, helping raise awareness of myositis within the wider community.
This program is designed for patients, care partners, healthcare professionals, and anyone interested in learning more about IMNM and the myositis experience.
