TMA urges the adoption of improved processes for obtaining disability benefits from the Veterans Administration. These benefits are crucial as they entitle former service members to comprehensive healthcare, disability compensation,…
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In 2015, almost ten years after Ingrid de Groot was diagnosed with dermatomyositis, she was invited to a European Neuromuscular Center workshop on “outcome measures and clinical trial readiness in…
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TMA Board of Directors Chair Rich DeAugustinis is leading our delegation of myositis advocates at EveryLife Foundation’s Rare Disease Week, February 24-26, 2026 in Washington, DC. Rare Disease Week brings…
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By Paula Eichenbrenner, TMA Executive Director. “Strength in numbers” is a cliche because it’s true, and every year, EveryLife Foundation for Rare Diseases assembles nearly 1,000 rare disease advocates during…
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If you have been diagnosed with a rare disease and you can’t work because of the symptoms of that disease you may qualify for Social Security disability benefits. As long…
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