TMA was honored to partner with Myositis Support and Understanding (MSU) to host the Externally Led Patient Focused Drug Development (PFDD) meeting for adult dermatomyositis (DM) on June 7. View the replay of this important day online. Through the PFDD, we captured DM patients’ experience, perspectives, and needs. The program was designed to inform the…
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The first-ever Externally Led Patient Focused Drug Development (EL-PFDD) meeting on June 7 offered a critical way for patients and their family members to highlight what life with DM is like.
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TMA medical advisor and patient advocate Ingrid de Groot insists patients be involved in medical research.
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In a victory for patients, a federal judge recently struck down a policy that allowed health insurance plans to use copay accumulator and maximizer programs, thereby charging patients more for essential prescription medications. This is good news for those who live with myositis and want to use a manufacturer’s assistance coupon to help them afford…
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Myositis can make it hard to earn a living. Financial resources are available for qualified individuals. It never hurts to ask.
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