Topic: Federal Advocacy for Rare Neuromuscular Diseases
-Patient rights Empowerment and Independence
-FDA Reforms
-Access to Care and Therapies
-Accelerating Therapy Development
Speaker:
Paul Melmeyer
Muscular Dystrophy
AssociationVice President
Paul serves as the Director of Regulatory Affairs at the Muscular Dystrophy Association. In this role, Paul leads MDA’s efforts on developing and advocating for the enactment and implementation of policies that accelerate the development and delivery of new therapies for neuromuscular disease patients. Paul also holds a Master of Public Policy (MPP) from the George Washington University. Paul is constantly seeking opportunities to make a positive difference through compassionate and effective policy change.
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