Want to raise awareness for myositis or share your story with a wider audience? This session will walk you through the basics of media pitching—from identifying the right outlets and contacts to crafting compelling pitches that grab attention. You’ll learn what journalists look for in a story, how to shape your message for different audiences,...
Register Here Join the TMA New Jersey Myositis Support Group: Connect, Learn, and Find Support The TMA New Jersey Myositis Support Group provides a welcoming and supportive environment for individuals living with myositis. Meeting every other month at 6:30 PM ET, this group offers a chance to connect with others who understand the challenges of...
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide...
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to...
Getting the right amount and type of protein can help preserve muscle, improve energy, and support overall well-being for those with myositis. In this session, you’ll learn: Why protein matters for people with muscle disease How much protein you really need The best sources of protein for strength and healing Simple ways to add more...
Come together with your myositis family for a fun culinary experience! You can join in from any home kitchen as we make two delicious, anti-inflammatory, and dysphagia-friendly recipes: Golden Turmeric Carrot & Coconut Velouté and Chai-Spiced Almond Milk Panna Cotta. You can cook along or just watch! Special guest TMA Board Treasurer Chip Galloway will kick things off...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of...
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
Register Here 💬 Your questions, answered by a myositis expert! Ask the Expert with Dr. Astia AllenzaraJoin us on Monday, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara, MD, MSCR, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on...
This 15-minute non-accredited educational activity is designed to provide clinicians with a concise yet impactful overview of how inclusion body myositis (IBM) affects patients' quality of life. The session explores how the progressive physical limitations, such as difficulty with mobility, hand function, and swallowing lead to loss of independence and increased risk of falls and...
TMA Supports ILD Day: Raise Awareness and Learn More About Interstitial Lung Disease Mark your calendars for ILD Day on Wednesday, September 10! Hosted annually during Pulmonary Fibrosis Awareness Month in September, ILD Day is a crucial opportunity to raise awareness about Interstitial Lung Disease (ILD), a condition that significantly impacts many within the myositis...
