2026 Highlights

This September, join the global myositis community in raising awareness and showing support for everyone impacted by myositis.

In honor of World Myositis Day on September 21, our virtual photo booth is open all month long. Snap a photo, choose a World Myositis Day graphic, and share it with your community to help spread awareness, connection, and the message that no one facing myositis is alone.

We’ll be sharing myositis resources, support, and helpful information throughout September as we lead up to World Myositis Day. Keep an eye out for new tools and resources all month long.

Special thanks to Bristol Myers Squibb for sponsoring this World Myositis Day initiative and helping us bring the myositis community together.

Visit the Virtual Photobooth Today!

Additionally, Myositis Canada has arranged to have Niagara Falls (American and Canadian sides) illuminated in the 4 primary colors of the WMD logo (red, blue, yellow, green). The falls illumination will be from 10:15 AM to 10:30 AM Eastern Time.

Watch the WMD Falls Illumination

About World Myositis Day

In 2001, TMA member Janice Goodell organized the first Myositis Awareness Day in Massachusetts to be recognized annually on September 21. Because one day was just not enough, in 2015 TMA expanded its awareness efforts to include the entire month of May. Nevertheless, myositis advocates worldwide have continued to recognize September 21 as a day to spread awareness of this rare disease.

World Myositis Day was adopted in 2023, building upon TMA’s National Myositis Awareness Day in the US. TMA proudly partners with international patient advocacy organizations to drive myositis awareness on World Myositis Day. World Myositis Day is now observed annually on September 21.

World Myositis Day 21 Sep

September is always an important month for us. We have hosted MyoCon: TMA’s Global Myositis Patient Conference in September every year since 1995. On September 25, 2006, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by TMA.

In 2015, TMA expanded observance efforts to the month of May. Myositis Awareness Month increases opportunities for raising awareness of the disease. September 21 continues to be observed, and now the recognition of the myositis community is on a worldwide scale!

TMA proudly participates in World Myositis Day along with the following patient advocacy organizations.

Other patient advocacy and rare disease organizations that observe World Myositis Day include:

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