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Share Your Rare in Honor of Rare Disease Day 2026

February 28

Rare Disease Journeys Community Survey 

For Rare Disease Day on February 28th, 2026, TMA wants to hear from you! Share your tips for navigating a rare medical journey in myositis and what you and your family do to overcome isolation, connect with others, and make your rare experience easier.

Share your story here.

Are you participating in a Rare Disease Day event? Please email tma@myositis.org to let us know where you are participating.

Visit TMA’s website for more events honoring rare disease awareness!

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