Myositis Awareness Month Events

Registration is open for all programs via TMA’s online calendar. You may also register for an event by clicking its link below.

2025 Diagnosis Days Schedule

Do you remember the day you received the diagnosis for your sub-type of myositis? Join us for Diagnosis Days this May to learn from and connect with other community members who know exactly that that life-altering experience feels like. On each Diagnosis Day, an educational “Ask the Expert” webinar features a TMA Medical Advisor and world-renowned myositis expert. Each webinar is paired with an informal “Café Chat” where your family can gather with others affected by your form of myositis.

• Inclusion Body Myositis (IBM): May 7
• Dermatomyositis (DM): May 15
• Necrotizing Myopathy (NM): May 21
• Polymyositis (PM) & Overlap Myositis (OM): May 30

2025 Detailed Schedule

• Thursday, May 1 – Myositis Awareness Month kicks off!
• Friday, May 2 – Myositis Awareness Golf Tournament
  • “Tee Off for TMA” Open
  • Front Royal, VA with virtual golfer option for $100 donation
  • Sponsored by Peake Technology
• Saturday – May 3 – Hyperbaric Oxygen Presentation
• Monday, May 5 – Meditation Mondays – A Space for Mindfulness & Healing Series Begins
• Monday, May 5 – Living Well with Myositis (empowerment clinic)
  • Experienced panelists representing all forms of myositis will share hints and hacks
• Wednesday, May 7 – Diagnosis Day – Inclusion Body Myositis
  • Special Ask the Expert: IBM Edition webinar
  • IBM Café Chat
  • Sponsored by Abcuro
• Friday, May 9 – Ask the Expert (Hybrid) and TMA Open House
  • Facebook live stream and in-person networking event in Columbia, MD
  • Sponsored by Abcuro and AstraZeneca
• Tuesday, May 13 – Autoimmune Myositis Interstitial Lung Disease (ILD) Webinar
  • Featuring Dr. Sonye Danoff
  • In collaboration with Nori’s Fight
  • Sponsored by Pfizer
• Thursday, May 15 – Diagnosis Day – Dermatomyositis
  • Special Ask the Expert: DM Edition webinar
  • DM Café Chat
  • Sponsored by Pfizer
• Thursday, May 15 – Scholarship Application Deadline for TMA’s Global Myositis Patient Conference
• Friday, May 16 – Feel Good Friday Game Night!
• Tuesday, May 20 – Care and Planning for our Myositis Journey Presentation
• Wednesday, May 21 – Diagnosis Day – Necrotizing Myopathy
  • Special Ask the Expert: NM Edition webinar
  • NM Café Chat
• Saturday, May 24 – Myositis Awareness Car Show
  • Sponsors include A&M Precision Laser LLC and Space Coast Harley-Davidson
  • Palm Bay, FL
• Thursday, May 29 – Bridging Experience and Expertise: Myositis Patients as Healthcare Providers (webinar)
• Friday, May 30 – Diagnosis Day – Polymyositis & Overlap Myositis
  • Special Ask the Expert: PM & OM Edition webinar
  • PM & OM Café Chat
• Saturday, May 31 – Confident & Comfortable: Embracing Fashion to Feel Good (webinar)
• Saturday, May 31 – Myositis Awareness Month ends
  • Final day to donate for myositis awareness
  • Plan now for World Myositis Day, September 21, 2025
  • Join us in Dallas, TX, US for TMA’s Global Myositis Patient Conference!

Thank you to the TMA volunteers and groups who have contributed to myositis awareness month programming, especially Women of Color Affinity Group and WomenWithIBM Affinity Group!

Your dedication, insight, and passion have not only enriched this month’s programming but have also created lasting impact in raising awareness, building community, and empowering voices that too often go unheard.