Welcome to the Southwest Florida Keep In Touch Support Group!

We are an upbeat, caring group of more than 200 myositis-challenged individuals who live along the beautiful southwest coast of the Gulf of Mexico in Florida. Our membership is about 50% IBM, 25% PM and 25% DM. We also have several members with Juvenile Myositis. Our ages range from 30 to 86.

We believe it’s important to “keep in touch” as we deal with our disease so our group meets quarterly. We meet on the first Saturday of February, May, August and November. In 2023 we changed our schedule so that our Feb and Aug meetings are ‘live’ in Sarasota. The May and Nov meetings are zoom only. We are no longer offering a ‘hybrid’ or combined live/zoom format. Our meetings include: time for everyone to share what’s happening in their lives, lunch and a presentation by a medical professional or other speaker of interest. Anyone with a myositis disease plus friends or family members are welcome and encouraged to attend.

In addition to our meetings, we gather for two luncheons, one in July and one in December. There’s no agenda for these events, just fellowship and a good time!

We actively support TMA and since our formation in 2007, have raised over $100,000 to support its programs, services and research efforts. Annual holiday parties, get-togethers, fundraisers and our newsletter all contribute to the feeling that we are ‘family’.

Our slogan is “We care, so come and share”. So, we invite our SW Florida myositis friends to join our KIT and join us as we “keep in touch”.

If you would like information on Keep In Touch (KIT) Support Groups, please email SupportGroups@myositis.org.