TMA provides a collection of informative podcasts by myositis experts, covering topics related to the forms of myositis, treatments, complications, research, and more.
Caring for Caregivers: A webinar from The Myositis Association and Myositis Support and Understanding
In celebration of National Caregivers Month, TMA and MSU invite you to join us for a conversation about the challenges of caring for someone with myositis and resources available to help. Featured speakers include:
- Jill Kagan from ARCH National Respite Network and Resource Center
- Jenny West from FamilyMeans, a Minnesota-based caregiver support agency
- Anne Stewart from Well Spouse Association and wife of an IBM patient
Wednesday, November 20 at 7pm ET
TMA is hosted a webinar on October 29th at 1:00pm EST with guest speaker, Carla Dellaporta from NeedyMeds. NeedyMeds is a national nonprofit that connects people to programs that will help them afford their healthcare expenses. Carla is the Director of Education & Partnerships at NeedyMeds. Her professional background has been dedicated to non-profit organizations. In her role at NeedyMeds she focuses on educating people about NeedyMeds and the healthcare cost savings resources offered and expanding partnership efforts. TMA is working with NeedyMeds to offer members of The Myositis Association discounted drugs and durable medical equipment.
Click here to download the drug discount
Reproductive Health in Myositis and other Autoimmune Diseases a TMA educational webinar
Monday, August 5, 2019 at 1pm ET
Join Dr. Lisa Sammaritano for a lively discussion about how inflammatory diseases like myositis affect reproductive issues such as birth control, pregnancy, breast feeding, and menopause.
Dr. Sammaritano is a rheumatologist at Hospital for Special Surgery in New York City. She maintains a busy clinical practice and participates in clinical research geared towards patients with rheumatologic conditions. She has a particular interest and expertise in reproductive issues in rheumatic disease patients, including contraception and pregnancy, and has presented on this topic to the TMA Support Group at Hospital for Special Surgery.
Please join on July 30 11 am – 12 noon EST for a very special webinar with FDA.
Topic: What is the FDA? What is the FDA’s role in research, drug development, and drug approval? How does the FDA work with the Rare Disease Community? What feedback is the FDA interested in getting from the patient community (especially the rare disease patient community)? Are there challenges/barriers that the FDA foresees to drug development now or in the future? What gives the FDA hope about treatments and cures?
Dr. Sonye Danoff and Dr. Cheilonda Johnson
Women of Color and Myositis
A Myositis Awareness Month webinar
Wednesday, May 8 at 12noon ET
Women of color are disproportionately affected by myositis diseases. During Myositis Awareness Month, The Myositis Association is reaching out to this community to raise awareness about myositis diseases and the importance of seeking medical attention when individuals experience symptoms.
Drs. Danoff and Johnson will offer a brief presentation about the unique challenges that affect women of color. A generous amount of time will be available for questions from the audience.
Pulmonologist Sonye Danoff, MD, PhD is Co-Director of the Interstitial Lung Disease Clinic at Johns Hopkins University Medical Center and Associate Director of the Johns Hopkins Myositis Center. She is one of the leading physician scientists dedicated to understanding and treating interstitial lung disease (ILD). Dr. Danoff is a member of TMA’s Medical Advisory Board.
Cheilonda Johnson, MD, MHS is Assistant Professor of Medicine at the Hospital of the University of Pennsylvania. She specializes in pulmonary medicine with a focus on interstitial lung disease (ILD) and sarcoidosis.
Presented by TMA staff
Annual Patient Conference Webinar
April 30 at 2pm ET
TMA’s Annual Patient Conference takes place in Minneapolis on September 5-8. We are so eager to share our enthusiasm about this year’s Conference that we’re hosting a webinar to let you know some of what’s new and exciting in this year’s presentations and activities. Lots of time will be allotted for you to ask questions about your areas of interest. Join us!
Dr. Conrad “Chris” Weihl
Position Your Myositis Grants For Success
April 9, 2019 @ 12 noon ET
In this webinar, TMA medical advisor and research committee chair Dr. Conrad “Chris” Weihl speaks to investigators who hope to submit a research grant application as well as institutional leaders who advise trainees and early career faculty.
Christina Charles-Schoeman, MD, MS
American Heart Month
February 21, 2019
Dr. Charles-Schoeman is a rheumatologist and associate professor of medicine at Ronald Reagan UCLA Medical Center in Los Angeles. She is an active investigator in multiple clinical trials involving novel therapies for myositis, and her research in this area includes the study of cardiovascular disease in myositis, including the use of cholesterol-lowering statin drugs and their association with myopathy.