TMA provides a collection of informative podcasts by myositis experts, covering topics related to the forms of myositis, treatments, complications, research, and more.


FDA’s Role in Drug Development & Rare Diseases

Please join on July 30 11 am – 12 noon EST  for a very special webinar with FDA.

Topic:  What is the FDA?  What is the FDA’s role in research, drug development, and drug approval? How does the FDA work with the Rare Disease Community?  What feedback is the FDA interested in getting from the patient community (especially the rare disease patient community)?  Are there challenges/barriers that the FDA foresees to drug development now or in the future?  What gives the FDA hope about treatments and cures?

Registration is required.  To register, click here


  

Dr. Sonye Danoff and Dr. Cheilonda Johnson
Women of Color and Myositis
A Myositis Awareness Month webinar
Wednesday, May 8 at 12noon ET

Women of color are disproportionately affected by myositis diseases. During Myositis Awareness Month, The Myositis Association is reaching out to this community to raise awareness about myositis diseases and the importance of seeking medical attention when individuals experience symptoms.

Drs. Danoff and Johnson will offer a brief presentation about the unique challenges that affect women of color. A generous amount of time will be available for questions from the audience.

Speaker bios

Pulmonologist Sonye Danoff, MD, PhD is Co-Director of the Interstitial Lung Disease Clinic at Johns Hopkins University Medical Center and Associate Director of the Johns Hopkins Myositis Center. She is one of the leading physician scientists dedicated to understanding and treating interstitial lung disease (ILD). Dr. Danoff is a member of TMA’s Medical Advisory Board.

Cheilonda Johnson, MD, MHS is Assistant Professor of Medicine at the Hospital of the University of Pennsylvania. She specializes in pulmonary medicine with a focus on interstitial lung disease (ILD) and sarcoidosis.


Presented by TMA staff
Annual Patient Conference Webinar
April 30 at 2pm ET

TMA’s Annual Patient Conference takes place in Minneapolis on September 5-8. We are so eager to share our enthusiasm about this year’s Conference that we’re hosting a webinar to let you know some of what’s new and exciting in this year’s presentations and activities. Lots of time will be allotted for you to ask questions about your areas of interest. Join us!


Dr. Conrad “Chris” Weihl
Position Your Myositis Grants For Success
April 9, 2019 @ 12 noon ET

In this webinar, TMA medical advisor and research committee chair Dr. Conrad “Chris” Weihl speaks to investigators who hope to submit a research grant application as well as institutional leaders who advise trainees and early career faculty.


Christina Charles-Schoeman, MD, MS
American Heart Month
February 21, 2019

Dr. Charles-Schoeman is a rheumatologist and associate professor of medicine at Ronald Reagan UCLA Medical Center in Los Angeles. She is an active investigator in multiple clinical trials involving novel therapies for myositis, and her research in this area includes the study of cardiovascular disease in myositis, including the use of cholesterol-lowering statin drugs and their association with myopathy.