TMA provides a collection of informative podcasts by myositis experts, covering topics related to the forms of myositis, treatments, complications, research, and more.
Feel Good Fridays- Laughter Yoga
March 27, 3:00pm ET
About our Presenter: Lynn Lizarraga is a retired teacher and certified Laughter Yoga leader. Lynn retired from teaching a few years after being diagnosed in 2003 with IBM. She spends her time living with her husband, John, in Yuma, AZ as a music leader in her church, leading Laughter Yoga sessions, and developing presentations to share how sound instruments can help with healing. The concept of Laughter Yoga was developed in India in 1995 by a medical doctor who realized that, although the benefits of laughter are many, we don’t laugh long enough or often enough to achieve those benefits unless we laugh intentionally.
About Laughter Yoga: No special equipment is required to participate in Laughter Yoga. You may wear regular clothing and remain sitting comfortably during the session. The laughter exercises are designed to give you a great internal massage and lift your diaphragm to help you breathe more easily. Feel free to participate as much or as little as you are able.
20-minute mindfulness meditation program
Presenter: Kim Beam Is a Licensed Clinical Social Worker practicing in Pennsylvania. She is also a qualified mindfulness instructor through UMass Medical School. Kim is a cancer survivor and the author of What Doctors Don’t Tell You: One Woman’s Journey Through Hodgkin’s Lymphoma
When: March 20, 2020 at 2 pm ET
Myositis and Mobility Equipment
March 13, 2020 1:00-2:00pm ET
Join TMA and Ginger Walls, PT, MS, NCS, ATP/SMS, Regional Clinical Education Manager from Permobil for this informative webinar to learn about mobility equipment available to support those living with myositis.
Ginger Walls has 30 years of experience as a physical therapist in the area of neuro rehab and wheelchair seating/mobility. She directed the Outpatient therapy clinics and the Seating/Mobility Program at Medstar National Rehabilitation Hospital in Washington, D.C. Additionally, Ginger has provided a variety of continuing education courses and lectures in the area of seating/mobility for many years. She has presented at major industry conferences including ISS, RESNA, and the PVA Summit. Ginger took on the role of Clinical Education Specialist for Permobil in 2015.
Autoimmune Diseases and Nutrition
Wednesday, January 29, 2020 at 3pm ET
Join Renee Lantner, dermatomyositis patient and former TMA Board member, and Susan Whitacre, MS, RD, LD, Dept of Neurology, University of Kansas Medical Center for a lively discussion on autoimmune disease and nutrition
Renee Lantner is a patient with dermatomyositis, a physician and former TMA board member. She became very interested in nutrition as a means to help in her journey with her disease. Susan has been the dietitian for the MDA clinic at the University of Kansas Medical Center for 18 years. She also has worked for the ALS clinic at KU for the last 12 years.
Caring for Caregivers: A webinar from The Myositis Association and Myositis Support and Understanding
In celebration of National Caregivers Month, TMA and MSU invite you to join us for a conversation about the challenges of caring for someone with myositis and resources available to help. Featured speakers include:
- Jill Kagan from ARCH National Respite Network and Resource Center
- Jenny West from FamilyMeans, a Minnesota-based caregiver support agency
- Anne Stewart from Well Spouse Association and wife of an IBM patient
TMA is hosted a webinar on October 29th at 1:00pm EST with guest speaker, Carla Dellaporta from NeedyMeds. NeedyMeds is a national nonprofit that connects people to programs that will help them afford their healthcare expenses. Carla is the Director of Education & Partnerships at NeedyMeds. Her professional background has been dedicated to non-profit organizations. In her role at NeedyMeds she focuses on educating people about NeedyMeds and the healthcare cost savings resources offered and expanding partnership efforts. TMA is working with NeedyMeds to offer members of The Myositis Association discounted drugs and durable medical equipment.
Click here to download the drug discount
Reproductive Health in Myositis and other Autoimmune Diseases a TMA educational webinar
Monday, August 5, 2019 at 1pm ET
Join Dr. Lisa Sammaritano for a lively discussion about how inflammatory diseases like myositis affect reproductive issues such as birth control, pregnancy, breast feeding, and menopause.
Dr. Sammaritano is a rheumatologist at Hospital for Special Surgery in New York City. She maintains a busy clinical practice and participates in clinical research geared towards patients with rheumatologic conditions. She has a particular interest and expertise in reproductive issues in rheumatic disease patients, including contraception and pregnancy, and has presented on this topic to the TMA Support Group at Hospital for Special Surgery.
Please join on July 30 11 am – 12 noon EST for a very special webinar with FDA.
Topic: What is the FDA? What is the FDA’s role in research, drug development, and drug approval? How does the FDA work with the Rare Disease Community? What feedback is the FDA interested in getting from the patient community (especially the rare disease patient community)? Are there challenges/barriers that the FDA foresees to drug development now or in the future? What gives the FDA hope about treatments and cures?
Dr. Sonye Danoff and Dr. Cheilonda Johnson
Women of Color and Myositis
A Myositis Awareness Month webinar
Wednesday, May 8 at 12noon ET
Women of color are disproportionately affected by myositis diseases. During Myositis Awareness Month, The Myositis Association is reaching out to this community to raise awareness about myositis diseases and the importance of seeking medical attention when individuals experience symptoms.
Drs. Danoff and Johnson will offer a brief presentation about the unique challenges that affect women of color. A generous amount of time will be available for questions from the audience.
Pulmonologist Sonye Danoff, MD, PhD is Co-Director of the Interstitial Lung Disease Clinic at Johns Hopkins University Medical Center and Associate Director of the Johns Hopkins Myositis Center. She is one of the leading physician scientists dedicated to understanding and treating interstitial lung disease (ILD). Dr. Danoff is a member of TMA’s Medical Advisory Board.
Cheilonda Johnson, MD, MHS is Assistant Professor of Medicine at the Hospital of the University of Pennsylvania. She specializes in pulmonary medicine with a focus on interstitial lung disease (ILD) and sarcoidosis.
Presented by TMA staff
Annual Patient Conference Webinar
April 30 at 2pm ET
TMA’s Annual Patient Conference takes place in Minneapolis on September 5-8. We are so eager to share our enthusiasm about this year’s Conference that we’re hosting a webinar to let you know some of what’s new and exciting in this year’s presentations and activities. Lots of time will be allotted for you to ask questions about your areas of interest. Join us!
Dr. Conrad “Chris” Weihl
Position Your Myositis Grants For Success
April 9, 2019 @ 12 noon ET
In this webinar, TMA medical advisor and research committee chair Dr. Conrad “Chris” Weihl speaks to investigators who hope to submit a research grant application as well as institutional leaders who advise trainees and early career faculty.
Christina Charles-Schoeman, MD, MS
American Heart Month
February 21, 2019
Dr. Charles-Schoeman is a rheumatologist and associate professor of medicine at Ronald Reagan UCLA Medical Center in Los Angeles. She is an active investigator in multiple clinical trials involving novel therapies for myositis, and her research in this area includes the study of cardiovascular disease in myositis, including the use of cholesterol-lowering statin drugs and their association with myopathy.