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Upcoming Live Discussions

  • Myositis skin disease and treatment

    Date: Wednesday, July 25, 2018 Time: 12:00 pm

    In recent years, much research has focused on understanding dermatomyositis and developing new treatments for this challenging disease. We now understand, for example, that not all DM patients experience muscle symptoms. And a number of clinical trails are currently in process, testing new medications that show promise in treating DM.

    TMA medical advisor and dermatologist Dr. Ruth Ann Vleugels specializes in myositis skin disease, including ADM. She serves as director of autoimmune skin diseases and is an associate professor of dermatology at Harvard Medical School.

    Dr. Vleugels will respond to members’ questions related to skin symptoms in DM and ADM.

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Past Discussions

  • TMA’s Past and Future

    Posted on: Wednesday, May 30, 2018 Time: 12:00 am

    Today, we have a conversation with TMA's Executive Director Bob Goldberg. As TMA celebrates 25 years as Your Myositis Association, Bob answers your questions about the progress that has been made during that time and shares his vision for TMA and the path forward to better treatments and ultimately a cure for myositis diseases.

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  • New Developments in How We Classify Myositis Diseases

    Posted on: Thursday, March 15, 2018 Time: 1:00 pm

    Today we are honored to have Dr. Hector Chinoy with us. He is a researcher and clinical rheumatologist at the University of Manchester in the UK. He is also an expert in genetic and environmental risk factors related to myositis. He was among the many myositis experts who spent several years developing a new set of classification criteria for myositis diseases. We’ve invited him to share his insights about the criteria and how they may change the way inflammatory muscle diseases and their subtypes are diagnosed, treated, and studied. Thank you for joining us today, Dr. Chinoy.

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  • Treatment Options and Promising Research for Refractory Myositis Cases

    Posted on: Monday, January 8, 2018 Time: 12:00 pm

    Rheumatologist and TMA medical advisor Floranne Ernste, MD has a particular interest in working with complex patients whose disease does not always respond to the usual therapies. As a myositis expert at the Mayo Clinic Myositis Center, she has been involved in research projects that have expanded our understanding of many aspects of inflammatory muscle disease. Today, Dr. Ernste will respond to members' questions about the challenges of refractory myositis, current treatment options, and hope for the future from promising research. Please welcome, Dr. Floranne Ernste.

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  • How to Be at Your Best Despite the Stress of Chronic Illness

    Posted on: Thursday, July 27, 2017 Time: 12:00 pm

    Amy Wood is a psychotherapist, professional life coach and mediator, motivational speaker, and author of the book Life Your Way. Over the last 20 years, she has helped hundreds of people channel their unique strengths into improving their lives. She says, "Genuine fulfillment is about stepping away from the cacophony of too much expert information, pulling out only that which resonates to create your own unique road map to success, and leaving the irrelevant rest behind." Dr. Wood practices in Portland, Maine and has a close relative who lives with myositis. Please join me in welcoming Dr. Wood to TMA's live discussion.

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  • Dealing with the Constant Hum of Pain in Myositis

    Posted on: Monday, May 15, 2017 Time: 12:00 pm

    We are pleased to welcome Wael Jarjour, MD. Dr. Jarjour is associate professor and director of the division of rheumatology and immunology at Ohio State University. His research is focused on autoimmunity, and his clinical practice includes dermatomyositis, polymyositis, lupus, mixed connective tissue disease, and other systemic autoimmune disorders. Dr. Jarjour also serves on TMA's Medical Advisory Board and will speak on medications and myositis at the TMA Annual Patient Conference in San Diego in September. Today Dr. Jarjour will respond to members' questions about how to deal with the constant pain that often accompanies myositis. Thank you for joining us today, Dr. Wael Jarjour.

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  • Autoantibodies and What They Tell Us About Myositis

    Posted on: Wednesday, March 29, 2017 Time: 12:00 pm

    We are pleased to introduce Kanneboyina Nagaraju, DVM, MVSc, PhD. Dr. Nagaraju is a professor and founding chair of the department of pharmaceutical sciences at the school of pharmacy and pharmaceutical sciences at SUNY-Binghamton University in Upstate New York. A member of TMA's Medical Advisory Board, Dr. Nagaraju is an immunologist with expertise in translational research in autoimmune and genetic muscle diseases. His current work includes development of an alternative steroid compound that is highly effective at decreasing inflammation without the challenging side effects seen with prednisone. Thank you for joining us today, Dr. Nagaraju.

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